My Occupational Therapy Blog

For my fourth and final neuro note, I chose to view a video about a young lady who told her story and experience with Myasthenia Gravis. I chose this video because I wanted more exposure and understanding about this diagnosis from someone’s personal experience. Kristen opens the video by explaining that Myasthenia Gravis means “grave muscle disease” and includes two types: ocular myasthenia and generalized myasthenia. Kristen was diagnosed with ocular myasthenia gravis when she turned 11 which manifested itself as droopy eyelids and double vision. She goes on to explain that it very quickly spread to her body and included weakness in muscles and difficulty with breathing. She reports that it took many months to diagnose. Upon diagnosis, doctors prescribed Kristen medication and eventually she underwent a thymectomy. She explains the thymus is believed to be related to the onset and could lead to a remission. She did in fact experience a remission and complete the rest of her sc...

                For the media project, I was assigned the case study about a woman named Susan who was diagnosed with Amyotrophic Lateral Sclerosis. The case study informed me that her mobility status was worsening and she was experiencing muscle weakness and fatigue. As an occupational therapy student, I knew I wanted to first focus on what activities were meaningful to Susan and how I could help her continue to engage in occupations as her disease progresses. One activity that Susan enjoys is playing cards with friends and family. Due to her limited mobility, weakness, and the progressive nature of ALS, I knew playing cards was an appropriate activity for my intervention and also determined that adaptive equipment would be very beneficial for Susan.   I decided to create the “Playing Card Holder” as my adaptive equipment from my assigned object, note cards, in order to address her muscle weakness so ...

     “Alex’s Journey with ALS” is a tribute video by   Marissa Coriell   to her husband, Alex,   who was diagnosed with Amyotrophic Lateral Sclerosis in 2013 and passed just two short years later. It was clear throughout the video that his “clinical carrot” or motivation was his faith. He knew this wasn’t the end for him and his belief that he would be healed was what motivated him to continue to be joyful and live life with purpose despite his devastating disease.       At the beginning of the video, Marissa documents his first symptoms which were difficulty with walking, speaking, and completing self-care tasks such as shaving. As the disease progresses, Alex is confined to a wheel chair, loses muscle tone and strength in his arms, and begins receiving nutrition through a feeding tube.     Marissa also filmed Alex engaging in several occupations that he found meaningful since the onset of ALS.   Blogging was one of th...

       "Inside the O'Briens" is a novel that follows the O'Brien family as they cope with their father's recent diagnosis with Huntington's disease and their genetic disposition to the disease. When a parent is diagnosed with Huntington's disease, their children each have a 50/50 chance of inheriting the disease as well. In reflecting on this book, what stuck out to me the most was how this disease affects each member of the family in such different and complex ways. Joe is having to accept the new diagnosis, cope with the realization that his mother also died from disease rather than alcohol, and cope with how his progressive and death will affect his family emotionally and financially. His kids are mourning the impending progression of this disease they will witness in their father while simultaneously questioning everything about their own lives if and when they learn they are carriers. Their is heartbreak, resentment, loss, guilt, and many other ...

    In order to further my understanding about Huntington’s disease, I listened to a podcast from “This American Life” titled “What Are You Doing for the Test of Your Life". The podcast opens with a woman named Kelly who is waiting on a genetic test that will let her know if she has the gene for Huntington’s disease. The podcast goes on to explain that Huntington’s disease is a neurodegenerative disorder. Kelly is the youngest of 6 sisters. Their mother had Huntington’s which gives each of them a 50% chance of also getting diagnosed with the disease. Two of her sisters are currently showing signs.      Kelly recorded her experience of getting tested on an audio diary in which she shares on the podcast.   She first interviews her sister who is showing signs. Her sister, Kathy, is in her 40’s and talks about how she finds herself not remembering how to do things, not being able to get to the bathroom fast enough, and also struggling to find the words t...

The Model of Occupational Self Efficacy is a model of practice theory that is divided into different stages surrounding a client's traumatic brain injury. The first stage involves  helping a client work towards accepting the limitations created by traumatic brain injury. The therapist will also review the resources and rehabilitation available to the client. The second stage is where the client engages in the intervention process seeking to increase their occupational participation. Stage 3 is where a client can improve their knowledge of a variety of things including medical precautions, use of assistive devices, and workplace adaption. Finally, stage 4 involves the client continuing to accept their condition and return to daily routine such as work or roles within their family. This process is aimed to develop self efficacy.    This theory is designed to be used with an adolescent, adult, or elderly population. The functional aspect of this theory includes increasing...