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Neuro Note #3: Alex's Journey

     “Alex’s Journey with ALS” is a tribute video by   Marissa Coriell   to her husband, Alex,   who was diagnosed with Amyotrophic Lateral Sclerosis in 2013 and passed just two short years later. It was clear throughout the video that his “clinical carrot” or motivation was his faith. He knew this wasn’t the end for him and his belief that he would be healed was what motivated him to continue to be joyful and live life with purpose despite his devastating disease.       At the beginning of the video, Marissa documents his first symptoms which were difficulty with walking, speaking, and completing self-care tasks such as shaving. As the disease progresses, Alex is confined to a wheel chair, loses muscle tone and strength in his arms, and begins receiving nutrition through a feeding tube.     Marissa also filmed Alex engaging in several occupations that he found meaningful since the onset of ALS.   Blogging was one of th...

Inside the O'Briens

       "Inside the O'Briens" is a novel that follows the O'Brien family as they cope with their father's recent diagnosis with Huntington's disease and their genetic disposition to the disease. When a parent is diagnosed with Huntington's disease, their children each have a 50/50 chance of inheriting the disease as well. In reflecting on this book, what stuck out to me the most was how this disease affects each member of the family in such different and complex ways. Joe is having to accept the new diagnosis, cope with the realization that his mother also died from disease rather than alcohol, and cope with how his progressive and death will affect his family emotionally and financially. His kids are mourning the impending progression of this disease they will witness in their father while simultaneously questioning everything about their own lives if and when they learn they are carriers. Their is heartbreak, resentment, loss, guilt, and many other ...

Neuro Note #2: What Are You Doing for the Test of Your Life?

    In order to further my understanding about Huntington’s disease, I listened to a podcast from “This American Life” titled “What Are You Doing for the Test of Your Life". The podcast opens with a woman named Kelly who is waiting on a genetic test that will let her know if she has the gene for Huntington’s disease. The podcast goes on to explain that Huntington’s disease is a neurodegenerative disorder. Kelly is the youngest of 6 sisters. Their mother had Huntington’s which gives each of them a 50% chance of also getting diagnosed with the disease. Two of her sisters are currently showing signs.      Kelly recorded her experience of getting tested on an audio diary in which she shares on the podcast.   She first interviews her sister who is showing signs. Her sister, Kathy, is in her 40’s and talks about how she finds herself not remembering how to do things, not being able to get to the bathroom fast enough, and also struggling to find the words t...

The Model of Occupational Self Efficacy

The Model of Occupational Self Efficacy is a model of practice theory that is divided into different stages surrounding a client's traumatic brain injury. The first stage involves  helping a client work towards accepting the limitations created by traumatic brain injury. The therapist will also review the resources and rehabilitation available to the client. The second stage is where the client engages in the intervention process seeking to increase their occupational participation. Stage 3 is where a client can improve their knowledge of a variety of things including medical precautions, use of assistive devices, and workplace adaption. Finally, stage 4 involves the client continuing to accept their condition and return to daily routine such as work or roles within their family. This process is aimed to develop self efficacy.    This theory is designed to be used with an adolescent, adult, or elderly population. The functional aspect of this theory includes increasing...

Neuro Note #1: Jillian's Story

       In lecture, I have found spinal cord injuries and their physiology fascinating. At the same time,   I have also realized how devastating they can be when a person loses their ability to use a large part of their body. One reason I chose to watch “Jillian’s Spinal Cord Story” is because I really enjoy the learning process that comes from hearing person’s account of their experience with that injury.   I am much more likely to retain the physiology or therapy practices when I can connect it back to someone’s story and the emotions and connection that come with that.         Jillian is a young adult who sustained a T4 spinal injury when she fell backwards off a third story balcony. She spoke about the initial fears of losing the ability to drive, not being able to be in a relationship, or missing out on attending concerts with friends. However, she spoke about choosing to be “strong” for her parents and embraced the challenge ...

Foundations Class Lecture: April 3

Today during Professor Flick's Lecture, we learned about the Institute for Healthcare Improvement and its “Triple Aim” initiative. This initiative includes goals to improve overall patient experience of care, improve health of populations, and reduce the per capita cost of health care. We also discussed health literacy is the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions. We talked about various barriers to this including low reading levels when asked to fill out documentation, lack of transportation to appointments, and lack of education in understanding personal health management.   The take home message for me was the reminder that our healthcare system needs a lot of improvement especially in developing a more holistic approach or model. I am thankful occupational therapy has that holistic view of a patient and hopefully overtim...

Reflection on Previous OT Observation in Hospitals

Before beginning occupational therapy school, I completed 100 hrs of observations in various settings. One setting I observed in was a hospital on a subacute floor where often physical therapists and occupational therapist would co-treat. I am reflecting now and acknowledge some areas that I am still uncertain about. I noticed in my observation that there was a lot of overlap between the treatment of the PT's and OT's and sometimes the treatment appeared the same. I observed that the main goal of most of the treatments was to get the patient up, out of the bed, in the chair, or walking down the hallway. I rarely observed discussion with the client about what was meaningful to them or work towards a specific occupation. My current thoughts now are that my observation was limited and I know I didn't see the full scope of what OT's do in a hospital setting. I also wander if OT's in this setting focus more on evaluation, ambulation, and then referral to an outpatient se...